Damned If I Do…

I feel like

I’m damned if I do

….and…

damned if I don’t

My ex husband

has always

brought out

the best and worst

in me at the same time

Can’t win- in a war

of words (verbal)

He wins; hands down

he has the words

I don’t

but on paper

let’s see him

write a poem

and then we’ll talk

He thinks he can

do no wrong

EVERYBODY does

even him

He’s VERY smart

and his words

devestated me

He can be exttemely

boring

….or ….

command an audience

like no-one else

He can write

not like me

I write from

my heart; my soul

He writes

with his brain

No denying it

He has a great mind

but the difference

is glaring

He gives the reader

facts

I give them

emotion

Which is better

Depends on what

you’re looking for

You cannot bludgen people

and expect them to argree

on the surface; yes

Anything…

Just make him stop

He does not take “no”

for an answer

In his eyes;

I’m a “hack”

In my eyes;

He’s full…

of himself

The truth is:

I’d rather

be alone

IF he left

and never came back

I love him

There are times

I simply do not like him

and would rather be alone

Tomorrow I go

to therapy

I’m depressed

unhappy

I just don’t

what to do

She always has

an open mind

As much as I try

I can’t make

my problems

go away

I would love to live

in a world

with less

stress

The Betrayal

Even before Birth
My brain, therefore
my body betrayed me

My Mother seizured
as a result
of having a “mild case”
of toxemia
She had injested too much salt
during her pregnancy
and even though she voiced
her concerns about her swollen body
The neglegeent OB/GYN
She was swollen
But the “top notch” Dr
told her; “You’re pregnant-
of course you’re swollen”
But my Mom knew- she told me
that her lack of a clear diagnosus
was based on the fact that my Mom
had not gained a lot of weight
Toxemia is only indicated
when the woman is retaining fluid
and therfore has a large weight gain
My Mom had a minimal wweight gain

The neglegence comes in here
The “Top NOtch” Dr
failed to listen to her
he discounted her complaints
saying that she was simply
…NERVOUS….NO
My Mother was quite bright
she wanted the Dr to test her “protein level”
He would not

This was a long time ago
Woman trusted Drs

My Mom was in a BAD place
She did not drive
She could not change Drs

But she knew
He was wrong

I was due in September,
after a very long, very hot Summer
No Air Conditioning
in that old house
My Mom was very Swollen
BUT…She had only gained
12 pounds
What were the odds
that she was toxic?

She KNEW she was
It was September
She and my Grandmother
were in the kitchen cooking
dinner for Rosh Hashunna
She did not feel well
It was Still hot
She was “due” in a few days
She bent down to get an onion.
and seizured
My grandmother shut the lights,
waited unil the seizure was past-
picked my Mom up and carried her
across the street
Thank G-d the hospital
was right there
My Dad could not have driven as quick
as my grandmother walked

My Mom was alive
and so was I
that was the imporyant part
My Dad was called
almost as a “Afterthought”
My Mom stayed in the hospital
and was not allowed out of bed
I was still kicking
My Mom was an avid reader
She was brought a copy
of “Woman’s Home Journal”

There was an article
in the magazine by Dr Lamaze
My Mom read it
and when she went into labor
she failed to call a nurse
until she felt it was too late to be
“knocked out”

She finally rang for a nurse
Because it was a Jewish holiday
the nurse prefered not to call my Mom’s Dr

She did NOT want him there
My mother had a history
of very short labors
She had rung for the nurse at 6 am
I was born at 6:29
A toung intern delivered me

His shift was over at 7
He went straight over
to the neighborhood Synogouge
which was across the street
My Dad was there
No-one bothered to call him
He was called over to the “Beema” (alter)
and the young intern reconized
the strange last name
After my Dad got off the Beema
The intern asked him if his wife
was in the hospital
Yes, it was a girl
EVERYTHING was “fine”
My Dad named me righ there
and then

and left shul
to join my Mom

 I “looked” fine
 


 
My pediatrician
said I was ok physically
but because of the seizures;
he could no and would not
“label me”.

My Mom was told to
write everything down

I did things “on time”
but not truely normal
Co-ordination was off
I walked at 13 moths,
but my gait was…
My speech was…
You get the picture

But my mind was fine
My brain was damaged
but my thought process
if anything; was quick

The pediatrician was adament
“raise her normal”
and they did

Agorophobia Revisited

I don’t like my house

It’s too small,

I’m alone

for the most part

I could give you

a lot if reasons

NOT to be there

I can only give

you one reason

to be there

I live there

I went out today

I went to therapy

and on the way home

I stopped at Walmart

I don’t drive

(not medically advised)

I take a bus

The bus driver

likes to stop off

at Walmart

I don’t mind

I need a few things

The driver said to be ready

to go home in 45 minutes

Sometimes 45 minutes

goes by in the blink

of an eye

Not today

I was done shopping in 15 minutes

I wanted to go home

I do not want

to get the bus driver

angry

I was thirsty

Had a drink

.

Went out

for a few puffs

of a cigarette

No bus driver

We had agreed

on 45 minutes

I get nervous.

He had dropped

me off at the door

Now there is a rule

I can only have

four bags

on the bus

It’s NEVER

enforced

Except….

Today

I never ask for help

The driver insists

on helping

I had 5 bags

She said something

I apologized

I was not sorry

I needed almost EVERYTHING

I bought

One of the reasons

I don’t like being

at Walmart

too long

I spend too much

It’s amazing

I don’t get out

that much

I think

The more I go out;

the better

Behaviour theraoy

I believe in it

I survived

I kept telling myself

“Never again”

I absolutely will

go again

Next week…

Same time,

Same place

30 miutes?

LOL!!!

I don’t have a choice

I’m  not the driver

I can dream;

can’t I?

Friday~Sunday

It’s Friday- I am going to therapy-

It’s pouring out

I will go anyway

even though I hate the rain

Cold, windy, dreary

This dampness

is killing me

I try hard not to complain

The pain I can tolerate;

the discomfort is unnyeilding

The whole weekend ahead

is now almost done

He went to the market

last night

I was not suprised

It took him

practically no time

at all

The store;

generally crowded

was pretty empty

last night

Saturday night

is not a usual

market night

I did not mind

I needed things

I plan to cook

I’m tired

of living on

frozen meals

I really can cook

I’m bored to tears

I need to do things

I can do

to lighten the load

from him

When it comes

down to the

I will rise occasion

I can do more

than I usually do

I am capable

I know I can take care

of myself

Stealing

I would not steal from

a friend

If a “friend”

stole from me.

That person

would never be a friend

again

If a person needed

something that bad

ASK

I am a rational person

My things are

just that;

mine

If things go missing

and no-one been

in this house I

co-own

and the person

I live with

did not take it

I can retace my steps

but IF I cannot come up

with what is missing;

I can only conclude

that an outsider

has STOLEN it

Now I admit

that I hide things

but this is something

I have not hidden

When the person

I live with

finds out:

He has rather

a bad temper

and IF he “figures”

out- the thief

is looking at jail time

I am a very compassionate

person- not without my

prejudices

but they are not the

norm

I don’t care

about STUPID people

I can only conclude

that if they had a decent

upbringing

they had malice

in their heart

I would not willingly

give these things up

IF karma exists

in this world

these people

will be brought

to justice

I will see to it

I am stronger

than I look

Make no mistake

Friends DO NOT steal

from friends

 

Naming A Child

When I got pregnant

I need to name the child after

my Mother’s Mother

Her name was Rebecca

but people called her

Betty

I find it rather curious

that I refer to my Grandmother

as my Mother’s Mother

because She is only

a picture to me

She died a long time ago

She died when my Mom

was only 7

My Mom

never really knew

her mother

anyway:

I have “theories”

about things

When naming my children

I shouted the name

out of a window

If it sounded ok

that was to be

the name

Monday’s Thoughts

With the help

of a wonderful therapist

I have decided to negate
the fact that
I have a rare Neurological
condition
No; it’s NOT curable
but I am still able
to function;
to go out
I may not be able
to drive-
so I take a bus
but I do not sit here
24/7
I exercise,I eat, I drink
I have Agorophobic
tendencies;
so I positive self talk

Life could be better
…but hell…
…it could…
…have turned out…
….
….a lot worse…..

Wednesday

I did my Wednesday trip

and ended up at Walmart

also went to 5 Below

Got Patti a gift

Next week I will get both

Patti and Tina gifts

and I will get Mark a card

I Got home at about 12:30

I did not buy alot

but at least I got out

That’s the important

part….

Dystonia has very few

good points

I nerely chicked out

Tomorrow

I will go

talk with Tina

To people

who don’t know

who Tina and Patti

are….

let me keep it

that way.

Love,

EVIL me